<?xml version="1.0" encoding="UTF-8" standalone="yes"?><oembed><version><![CDATA[1.0]]></version><provider_name><![CDATA[Ballastexistenz]]></provider_name><provider_url><![CDATA[https://ballastexistenz.wordpress.com]]></provider_url><author_name><![CDATA[Mel Baggs]]></author_name><author_url><![CDATA[https://ballastexistenz.wordpress.com/author/ameliabaggs/]]></author_url><title><![CDATA[I knew moving took effort,&nbsp;but&#8230;]]></title><type><![CDATA[link]]></type><html><![CDATA[<p>I&#8217;m at the MIT media lab at the moment (on one of their laptops, in fact), and this morning I got a chance to try that <a href="http://ballastexistenz.autistics.org/?p=367">galvanic skin response thing</a> again.  It showed something that I thought might be normal, but I was told was definitely <em>not</em> normal:  Every time I voluntarily moved a body part, the graph started jumping upwards.  I am told that most people can wave their arms around really heavily and not have it do that.  All I had to do was move a leg a little bit or even wiggle my toes.</p>
<p>This did not happen during movements that were more automatic.  Rocking did not cause the response to jump upwards.  Neither did typing.  But those were the <em>only</em> two things that didn&#8217;t, and that&#8217;s because neither of them were something I just decided on doing and then did, they were both run in the background.</p>
<p>I have known for a long time that my relationship to voluntary movement is not the same as my relationship to automatic movements, that there is in fact quite a large difference between the two, and that I process automatic movements as &#8220;background&#8221; but don&#8217;t process voluntary movements that way.  And that most movements for me are not automatic, but require finding the body part and making it move around for me in a fairly laborious way.</p>
<p>In fact, I met Oliver Sacks at <a href="http://h20.media.mit.edu/">Human 2.0</a> the other day, and this is exactly what he and I talked about.  I was explaining to him the lengths I go to to string together automatic movements in order to get through the day, and how difficult voluntary movements are in comparison, and so forth.  He told me how much effort a friend of his with Parkinson&#8217;s expended in his head just planning everything out like that, and I told him my <a href="http://ballastexistenz.autistics.org/?p=190">stork analogy</a>, which he liked.</p>
<p>But we&#8217;d just been talking about this.  And I didn&#8217;t know it was going to show up on any sort of objective measurement of the way I moved.  In fact when the things started jumping up, the person was asking what was going on, and I said &#8220;It&#8217;s just from me moving.&#8221;  And she said &#8220;But you moving <em>shouldn&#8217;t make it go up like that</em>, most people can wave their arms around frantically, even wave the hand the electrodes are attached to, and nothing like that happens.&#8221;</p>
<p>So apparently there <em>is</em> an objectively verifiable measure of the amount of effort I put into even very simple voluntary motions, and also of the fact that the motions of typing and rocking (and presumably other automatic movements that have not yet happened while I was attached to the sensors) are not doing that to me at all.</p>
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